Scottish Dementia Clinical Research Network

Description

The Scottish Dementia Clinical Research Network (SDCRN) was set up in 2008 to spread a culture of clinical research in dementia across Scotland and to improve recruitment of volunteers from both urban and rural areas.

We seek to increase the number of people who volunteer for clinical studies and increase research in the NHS in dementia.

We have set up a register of patients with dementia and their carers. It provides a central database of people who are happy to be contacted about research into the causes and consequences of dementia.

The register holds the names and medical information of willing participants who are interested in taking part in future research.

Public involvement in research

We have 140 people with dementia and carers involved in our Patient & Public Involvement. They have been involved in the network Advisory Board, Focus Groups, Speaking at our Conference, reviewing academic papers, steering groups and committees and reviewing the network’s promotional material and website content.

http://www.sdcrn.org.uk/Involvement